View 2020 Advocacy letter

The diagnosis and treatment of invisible illnesses in Canada is prolonged due to a high degree of stigma in our society.

Fibromyalgia, autoimmune disorders, chronic pain, allergies, Lyme disease and mental illness are notoriously ignored, unacknowledged and underfunded in the Canadian health care system.

Myalgic Encephalomyelitis symptoms overlap in some cases of Long Covid. In Canada, obtaining a proper diagnosis entails a great deal of hurdles with physicians and testing. If a diagnosis is made, there is, little to no treatment or support after the initial diagnosis.

Organizations such as #ME ACTION are dedicated to research, advocacy and support for those living with ME. Their recent campaign, aimed at Long Covid tells us the importance of #STOPRESTPACE.

Dysautonomia is also documented both early on in the Acute stage of Covid 19 and is indicated as a possible answer for the months to years long sequelae that Long Covid sufferers across the world are now facing.

Dysautonomia International states an average of SEVEN years is often the span it takes for a patient to receive a formal diagnosis of POTS, a form of Dysautonomia. Multiple presentations of Dyautonomia in all ages are occurring after a Sars-Cov-2 infection.

The same website has only 17 physicians across Canada to recommend as knowledgable of Dysautonomia. As many patients in Canada know, finding a doctor who is even aware of the condition’s existence is few and far between.

Studies are showing that 1 in 3 individuals who come into contact with Covid 19 will go on to develop long term symptoms. The amount of Canadians who are experiencing Long Covid, ME and Dysautonomia far outweighs medical professionals in Canada who are able to diagnose and give appropriate treatment.

Petition E-3172

Petition to the Government of Canada

Kids and Long Covid

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See the latest on research, articles and resources available for kids and their families who are experiencing Long Covid

Kids and Long Covid

Long Covid Clinics

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View the Long Covid clinics available in your province

View Long Covid Clinics

Online Resources

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Provincial Resources

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Studies and Research opportunities

Research opportunities for Canadians

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Advocacy and Recognition

Learn more about advocacy for Long Covid and related chronic illness

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