Long COVID Resources for Canadians
Guides to bring to your doctor, pacing and rehab help, peer support, help with work and disability benefits, and ways to join research. Every link is checked, and each listing tells you if it costs money.
- 92 resources
- 45 in Canada
- Sept 2026 links checked
No doctor, or waiting for care? Start here
Four free guides that help most people first. Tap one to jump to it.
- MyGuide: Long COVIDSelf-management guide from BC’s health authority. Useful anywhere in Canada.
- Fatigue and post-exertional symptomsHow to pace safely, from World Physiotherapy.
- Tools to bring to a new clinicianA short list any doctor, nurse practitioner or walk in clinic can use.
- Tips for managing health careOrganize appointments, records and conversations, from Realize.
No family doctor? A walk in or virtual care clinic can assess you, and in most provinces and territories you can call 811 for health advice.
The best long COVID guides to bring to your doctor
Three guides from specialists and patient researchers, plus the research group behind the treatment guide. Read them at home or print them for your next appointment.
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Clinical Care Guide for ME/CFS & Long COVID
How to diagnose and manage ME/CFS, long COVID and related infection associated chronic conditions, from the Bateman Horne Center. Written for clinicians, patients and caregivers, so it’s easy to share with your doctor.
View the guide: Clinical Care Guide for ME/CFS & Long COVID (opens in a new tab) -
Long COVID Treatment Guide
From the Patient-Led Research Collaborative and RTHM: treatment options including medications, supplements, pacing and procedures, with a summary of the evidence for each. Made for patients and clinicians to use together.
Open the PDF: Long COVID Treatment Guide (opens in a new tab) -
Pacing & Management Guide for ME/CFS & Long COVID
Explains post exertional malaise (PEM), why graded exercise can cause harm, and how to support pacing, energy management and rest. Print it for your next appointment.
Open the PDF: Pacing & Management Guide for ME/CFS & Long COVID (opens in a new tab) -
Patient-Led Research Collaborative
People living with long COVID and related conditions who run their own studies, fund biomedical research and push for better care. Their PLRC Registry, designed by patients for patients, connects you with clinical trials and research studies.
Looking for a long COVID clinic?
The clinic map lists public clinics, hospital rehab programs and virtual care by province, with referral and cost details, and what you can do where there is no public clinic.
Search the directory
Pick your province to see local resources plus Across Canada ones, or filter by topic.
$ Paid = not covered by provincial health insuranceReferral needed = ask your family doctor or NP
Showing all 92 resources
The Across Canada and online resources below still apply to you. For care, see what you can do where there is no public clinic.
Government & health authority information
Official long COVID information from the Government of Canada and provincial health authorities.
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Across CanadaFrançais
Government of Canada: Post COVID-19 Condition (Long COVID)
Official information on symptoms, risk and treatment from the Public Health Agency of Canada. In June 2023, the most recent national estimate, 19% of Canadian adults who got COVID-19 (about 3.5 million people) had symptoms 3 or more months later.
Visit website: Government of Canada: Post COVID-19 Condition (Long COVID) (opens in a new tab) -
British Columbia
MyGuide: Long COVID (PHSA)
Customizable online guide from BC’s Provincial Health Services Authority for people with lingering symptoms after COVID-19, with tools, skills and a resource catalogue. Useful anywhere in Canada.
Visit website: MyGuide: Long COVID (PHSA) (opens in a new tab) -
British Columbia
PHSA: Long COVID Recovery Care
BC’s Post-COVID-19 Interdisciplinary Clinical Care Network: how to get care, self management, return to work, finances and other supports in British Columbia.
Visit website: PHSA: Long COVID Recovery Care (opens in a new tab) -
New BrunswickFrançais
Government of New Brunswick: Post COVID-19 Condition
New Brunswick’s self care tips for post COVID-19 condition, organized by symptom.
Visit website: Government of New Brunswick: Post COVID-19 Condition (opens in a new tab) -
Prince Edward Island
Health PEI: Post-COVID Condition
Information for Islanders, pointing to your health provider, 811 and virtual care for people without a family doctor. No dedicated clinic is listed.
Visit website: Health PEI: Post-COVID Condition (opens in a new tab)
Factsheets, checklists & self help tools
Printable guides and symptom checklists you can use at home or bring to appointments.
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British Columbia
PHSA MyGuide: Dysautonomia & Long COVID
A guide from BC’s Provincial Health Services Authority to dysautonomia in long COVID, including POTS, with gentle ways to calm the “fight or flight” response such as pacing, breathwork, sleep and hydration.
Read the guide: PHSA MyGuide: Dysautonomia & Long COVID (opens in a new tab) -
United StatesPDF
Bateman Horne Center: Shortlist of Tools for Care Management
One page list of practical tools for managing ME/CFS and long COVID, including letters you can share with healthcare providers.
Open the PDF: Bateman Horne Center: Shortlist of Tools for Care Management (opens in a new tab) -
British ColumbiaPDF
PHSA: Symptoms of Post COVID (infographic)
One page visual summary of common long COVID symptoms from BC’s Post-COVID-19 Interdisciplinary Clinical Care Network.
Open the PDF: PHSA: Symptoms of Post COVID (infographic) (opens in a new tab) -
QuebecPDFFrançais
Long COVID: What You Need to Know (Santé Montérégie)
Self management sheet (January 2024) from the CISSS de la Montérégie-Ouest. Also available in French: “La COVID longue : ce que vous devez savoir”.
Open the PDF: Long COVID: What You Need to Know (Santé Montérégie) (opens in a new tab) -
Saskatchewan
University of Saskatchewan: Resources for Patients & Families
Resources sorted by topic for people living with post COVID-19 condition and their families, including a self management guide and quick reference sheets.
Visit website: University of Saskatchewan: Resources for Patients & Families (opens in a new tab) -
Ontario
UHN & U of T Library Guide: Long COVID
List of long COVID information for patients and families from UHN’s Patient & Family Learning Centres.
Visit website: UHN & U of T Library Guide: Long COVID (opens in a new tab) -
International
More Than 50 Long-Term Effects of COVID-19
Open access review (Lopez-Leon et al., Scientific Reports, 2021) with a well known infographic of more than 50 long term effects of COVID-19.
Read the article: More Than 50 Long-Term Effects of COVID-19 (opens in a new tab) -
United States
COVID-19 “Long Hauler” Symptoms Survey Report
Early 2020 survey and infographic from Indiana University School of Medicine and Survivor Corps on symptoms reported by long haulers. Historical, but a useful record.
Visit website: COVID-19 “Long Hauler” Symptoms Survey Report (opens in a new tab) -
United StatesPDF
RECOVER: Talking About Long COVID With Your Child’s Doctor
Tip sheet from the NIH RECOVER study to help parents track symptoms and prepare for their child’s medical appointment.
Open the PDF: RECOVER: Talking About Long COVID With Your Child’s Doctor (opens in a new tab) -
United Kingdom
Long Covid Kids: Educational Toolkit
Free videos and resources to help teachers and schools support students living with long COVID.
Visit website: Long Covid Kids: Educational Toolkit (opens in a new tab) -
United Kingdom
Long Covid Kids: Pacing Penguins
Kid friendly tools, including the Pacing Penguins and the Cautious Tortoise poster, to help children manage their energy with long COVID.
Visit website: Long Covid Kids: Pacing Penguins (opens in a new tab)
Rehab, pacing & breathing
Safe rehabilitation that respects post exertional malaise (PEM), plus pacing and breathing support.
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International
Long COVID Physio
An international group of physiotherapists living with long COVID. Free information on safe rehab, pacing and post exertional symptom exacerbation (PESE).
Visit website: Long COVID Physio (opens in a new tab) -
International
Long COVID Physio: Post-Exertional Symptom Exacerbation
Explains why symptoms can crash after activity, and how to rest, pace and return to activity safely.
Visit website: Long COVID Physio: Post-Exertional Symptom Exacerbation (opens in a new tab) -
InternationalFrançais
Long COVID Physio: Video Series
Free short videos on living with long COVID and safe rehab. Translated into French, Spanish, German, Italian, Brazilian Portuguese, Arabic, Bangla, Bahasa Indonesia and Mandarin.
Visit website: Long COVID Physio: Video Series (opens in a new tab) -
International
World Physiotherapy: Long COVID Information Hub
Briefing papers and guidance on long COVID rehab from the global body for physiotherapy.
Visit website: World Physiotherapy: Long COVID Information Hub (opens in a new tab) -
InternationalPDFFrançais
World Physiotherapy: Fatigue & Post-Exertional Symptom Exacerbation
Info sheet explaining fatigue and PESE, and why exercise must be approached with caution. Available in several languages, including French.
Open the PDF: World Physiotherapy: Fatigue & Post-Exertional Symptom Exacerbation (opens in a new tab) -
InternationalPDFFrançais
WHO: Support for Rehabilitation, Self-Management After COVID-19
World Health Organization booklet (2nd edition, 2021) with self management tips for breathlessness, energy, memory, mood and daily activities. Many languages.
Open the PDF: WHO: Support for Rehabilitation, Self-Management After COVID-19 (opens in a new tab) -
United States$ Paid
Stasis
Online breathing and autonomic conditioning programs, an app and 1:1 coaching. Paid options; check the website for current pricing.
Visit website: Stasis (opens in a new tab)
Peer support groups
Connect with other people living with long COVID in Canada and around the world.
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Across CanadaFacebook account needed
Long COVID Canada Collaborative
A Canadian Facebook group where people living with long COVID share support, news and practical advice.
Join the group: Long COVID Canada Collaborative (opens in a new tab) -
QuebecFacebook account neededFrançais
COVID longue Québec / Quebec Long COVID
Facebook peer support group for people with long COVID in Quebec, in French and English.
Join the group: COVID longue Québec / Quebec Long COVID (opens in a new tab) -
InternationalFacebook account needed
Long Covid Support Group
Large, moderated international Facebook group for people with long COVID and their families, run by the UK charity Long Covid Support.
Join the group: Long Covid Support Group (opens in a new tab) -
United Kingdom
Long Covid Support
UK based international charity offering moderated peer support groups (including carers and men’s groups), advocacy and research partnerships.
Visit website: Long Covid Support (opens in a new tab)
Research, advocacy & patient organizations
Canadian and international organizations working on long COVID, ME/CFS and dysautonomia (including POTS).
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International
Patient-Led Research Collaborative
Researchers who live with long COVID themselves, running studies, funding biomedical research and pushing for better care. Their PLRC Registry connects people with clinical trials and research studies.
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Across Canada
Long COVID Web
Canada’s national long COVID research network, funded by CIHR. Brings together scientists, clinicians and people with lived experience, and publishes a Trusted Resources list for patients and families.
Visit website: Long COVID Web (opens in a new tab) -
Across Canada
Canadian Covid Society
Canadian group sharing COVID-19 guidance and tools for Canadians, with a focus on clean air, safer healthcare and long COVID awareness.
Visit website: Canadian Covid Society (opens in a new tab) -
Across Canada
Rehabilitation Science Research Network for COVID
University of Toronto led international network advancing long COVID rehab research, including policy briefs on episodic disability and work.
Visit website: Rehabilitation Science Research Network for COVID (opens in a new tab) -
Alberta
Calgary Autonomic Investigation Lab: POTS & Long COVID
University of Calgary Cumming School of Medicine lab researching POTS like symptoms after COVID-19, with patient information.
Visit website: Calgary Autonomic Investigation Lab: POTS & Long COVID (opens in a new tab) -
British Columbia
ME|FM Society of BC
Nonprofit charity supporting British Columbians living with ME, long COVID, fibromyalgia and related infection associated chronic conditions.
Visit website: ME|FM Society of BC (opens in a new tab) -
Across Canada
Canadian Lung Association: Long COVID
Overview of long COVID symptoms and the research the Lung Association funds. Updated May 2026.
Visit website: Canadian Lung Association: Long COVID (opens in a new tab) -
United States
Bateman Horne Center
Utah nonprofit clinic and research centre for ME/CFS, long COVID and related illnesses, known for clear, free education for patients and doctors.
Visit website: Bateman Horne Center (opens in a new tab) -
United States
Dysautonomia International
Nonprofit that funds research, educates doctors and supports people living with autonomic disorders such as POTS.
Visit website: Dysautonomia International (opens in a new tab) -
United States
Solve ME/CFS Initiative
US nonprofit funding research and advocacy for ME/CFS, long COVID and other post infection diseases.
Visit website: Solve ME/CFS Initiative (opens in a new tab) -
International
#MEAction
International network advocating for people with ME/CFS, with pacing guides and local groups.
Visit website: #MEAction (opens in a new tab) -
United States
Long-COVID Alliance
Coalition of patient advocates, scientists and organizations working together on long COVID and related post infection illnesses.
Visit website: Long-COVID Alliance (opens in a new tab) -
International
Long Covid The Answers
Independent education hub led by Dr. Funmi Okunola, with articles, a podcast certified for Mainpro+ credits and a directory of practitioners.
Visit website: Long Covid The Answers (opens in a new tab) -
United Kingdom
Long Covid Kids
UK charity with a global community, supporting children and young people with long COVID and their families.
Visit website: Long Covid Kids (opens in a new tab) -
United States
Long Covid Families
Nonprofit advocacy and support group raising awareness of long COVID and post viral illness in children.
Visit website: Long Covid Families (opens in a new tab) -
United Kingdom
Long Covid SOS
UK charity campaigning for recognition, research and rights for people with long COVID.
Visit website: Long Covid SOS (opens in a new tab)
Work, income & disability benefits
Help with returning to work, disability claims and financial supports.
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Across Canada
Realize: Long COVID and Work
Canadian resources on long COVID as an episodic disability: tips for disability claims, workplace accommodations and guidance for employers and insurers.
Visit website: Realize: Long COVID and Work (opens in a new tab) -
Across CanadaPDF
Realize: Roadmap for Disability Income Benefits (Long COVID)
Step by step guide to disability income options in Canada for people with long COVID.
Open the PDF: Realize: Roadmap for Disability Income Benefits (Long COVID) (opens in a new tab) -
Across CanadaPDF
Realize: Tips for Managing Health Care
Tip sheet on organizing appointments, records and conversations with providers when living with an episodic disability.
Open the PDF: Realize: Tips for Managing Health Care (opens in a new tab) -
Across Canada
Realize
National Canadian charity working on rehabilitation, episodic disability and income security for people living with HIV, long COVID and other episodic conditions.
Visit website: Realize (opens in a new tab) -
Across Canada
Policy Brief: Long COVID, Episodic Disability & Labour Force Participation
September 2024 brief with 13 calls to action for governments, employers, insurers and HR professionals to keep people with long COVID in the workforce.
Visit website: Policy Brief: Long COVID, Episodic Disability & Labour Force Participation (opens in a new tab) -
Across CanadaFrançais
Canada Revenue Agency: Disability Tax Credit
How to apply for the Disability Tax Credit (form T2201) if long COVID severely and persistently limits your daily activities.
Visit website: Canada Revenue Agency: Disability Tax Credit (opens in a new tab)
For doctors & healthcare providers
Canadian clinical guidelines, accredited education and research summaries. Share these with your care team.
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Across CanadaFrançais
Government of Canada: Post COVID-19 Condition for Health Professionals
Clinical summary of the Canadian guidelines: diagnosis, pacing for post exertional malaise and treatment. Updated January 2026.
Visit website: Government of Canada: Post COVID-19 Condition for Health Professionals (opens in a new tab) -
Across Canada
CAN-PCC: Canadian Guidelines for Post COVID-19 Condition
Canada’s national long COVID guidelines, developed by researchers, clinicians and people with lived experience and funded by the Public Health Agency of Canada.
Visit website: CAN-PCC: Canadian Guidelines for Post COVID-19 Condition (opens in a new tab) -
Across Canada
CAN-PCC RecMap: Recommendations
Searchable map of Canadian long COVID recommendations, sorted by topic and population, for clinicians, patients and policymakers.
Visit website: CAN-PCC RecMap: Recommendations (opens in a new tab) -
International
COVID-19 Recommendations Map (eCOVID-19 RecMap)
McMaster University and Cochrane Canada’s map of thousands of COVID-19 guideline recommendations. Best treated as an archive.
Visit website: COVID-19 Recommendations Map (eCOVID-19 RecMap) (opens in a new tab) -
Across Canada
Long COVID Web ECHO
Free, accredited, case based virtual learning for Canadian physicians, nurses and allied health. Fridays, September 2026 to June 2027.
Visit website: Long COVID Web ECHO (opens in a new tab) -
QuebecFrançais
ECHO CCAI (French language Long COVID ECHO)
Free French language Zoom sessions for Canadian clinicians on long COVID, Lyme disease and ME/CFS. The most recent sessions listed ran May to November 2025, so check the page for new dates.
Visit website: ECHO CCAI (French language Long COVID ECHO) (opens in a new tab) -
Saskatchewan
University of Saskatchewan: Post-COVID Condition Education
Continuing education program with recorded webinars (no new webinars scheduled for 2026) on the respiratory, cardiac, neurological and cognitive effects of long COVID.
Visit website: University of Saskatchewan: Post-COVID Condition Education (opens in a new tab) -
International
Long Covid The Answers Podcast (Mainpro+)
Podcast hosted by Dr. Funmi Okunola, certified for Mainpro+ credits for Canadian family physicians and open to everyone.
Listen: Long Covid The Answers Podcast (Mainpro+) (opens in a new tab) -
Across Canada
CMAJ: Diagnosing Post-COVID-19 Condition in Adults
Short practical article for clinicians (Quinn, Razak, Cheung, 2023) on the case definition and common symptoms.
Read the article: CMAJ: Diagnosing Post-COVID-19 Condition in Adults (opens in a new tab) -
Across Canada
CMAJ: Assessing Common Symptoms of Long COVID
How to assess fatigue, mood, breathlessness, sleep and palpitations in adults with long COVID (2023).
Read the article: CMAJ: Assessing Common Symptoms of Long COVID (opens in a new tab) -
Across Canada
CMAJ: Treating Common Symptoms of Long COVID
Treatment approaches for five common symptoms, including pacing with the “4 Ps” (2023).
Read the article: CMAJ: Treating Common Symptoms of Long COVID (opens in a new tab) -
Across Canada
Canadian Journal of Cardiology: Cardiovascular Considerations in Long COVID
How to assess and manage heart related symptoms, including POTS, in people with suspected long COVID (2023).
Read the article: Canadian Journal of Cardiology: Cardiovascular Considerations in Long COVID (opens in a new tab) -
Ontario
Ontario Medical Association: Long COVID & Other Considerations
Guidance for Ontario physicians: diagnostic code 081, eConsult, rehab resources and income supports.
Visit website: Ontario Medical Association: Long COVID & Other Considerations (opens in a new tab) -
Ontario
Ontario eConsult: Post-COVID Condition Specialists
Lets Ontario family doctors and nurse practitioners ask post COVID specialists for advice. Ask your provider to use it if you don’t have a specialist.
Visit website: Ontario eConsult: Post-COVID Condition Specialists (opens in a new tab) -
British Columbia
PHSA: Long COVID Recovery Care for Health Professionals
Referral information for BC’s virtual Post-COVID Recovery Clinic, a primary care toolkit and the 10 minute stand test.
Visit website: PHSA: Long COVID Recovery Care for Health Professionals (opens in a new tab) -
QuebecPDFFrançais
INESSS: Post-COVID-19 Conditions Management Support Tool
Quebec’s clinical tool (2022) for physicians, pharmacists and nurses on assessment, testing and symptom management, including post exertional malaise. French version on the INESSS website.
Open the PDF: INESSS: Post-COVID-19 Conditions Management Support Tool (opens in a new tab) -
Across Canada
Healthcare Costs and Effects of Post-COVID-19 Condition in Canada
Study in the Canada Communicable Disease Report (October 2023) estimating the yearly cost of long COVID in Canada.
Read the article: Healthcare Costs and Effects of Post-COVID-19 Condition in Canada (opens in a new tab) -
United Kingdom
Long Covid SOS: GP Leaflet
Leaflet first made with the Royal College of General Practitioners and since updated with the Clinical Post Covid Society, to help family doctors recognize and manage long COVID. Written for the UK.
Visit website: Long Covid SOS: GP Leaflet (opens in a new tab) -
International
BMJ: Long Covid, an Update for Primary Care
Practice pointer with an infographic for family doctors (Greenhalgh et al., 2022).
Read the article: BMJ: Long Covid, an Update for Primary Care (opens in a new tab) -
International
Long COVID: Major Findings, Mechanisms and Recommendations
Widely cited open access review by Davis, McCorkell, Vogel and Topol in Nature Reviews Microbiology (2023).
Read the article: Long COVID: Major Findings, Mechanisms and Recommendations (opens in a new tab) -
International
Long COVID Science, Research and Policy
Newer review by Al-Aly and colleagues in Nature Medicine (2024) covering the science and the policy response to long COVID.
Read the article: Long COVID Science, Research and Policy (opens in a new tab) -
United States
LitCovid: Long COVID Research Database
The US National Library of Medicine’s curated, searchable database of published long COVID research.
Visit website: LitCovid: Long COVID Research Database (opens in a new tab)
Take part in research
Find long COVID studies and registries you can join.
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InternationalAdults 18+
PLRC Registry: get matched to long COVID research
Run by the Patient-Led Research Collaborative and designed by patients for patients. Adults anywhere in the world can join with a short enrollment survey, then answer brief surveys every three months. Sharing health records or wearable data is optional, and identifying details are replaced with random codes.
Join the registry: PLRC Registry (opens in a new tab) -
International
Long Covid Studies
Patient built website that lists long COVID clinical trials (using data from ClinicalTrials.gov) and explains how to take part.
Visit website: Long Covid Studies (opens in a new tab)
Lived experience, books, podcasts & news
Real stories from people with long COVID, plus books, podcasts and news.
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Across Canada
Health Experiences Canada: Living with Long COVID
Research based video and audio interviews with Canadians living with long COVID, organized by topic.
Visit website: Health Experiences Canada: Living with Long COVID (opens in a new tab) -
Ontario
Living With Long COVID: Education & Awareness Hub
Designed together education hub from the St. John’s Rehab research program at Sunnybrook, for patients, families, caregivers and providers.
Visit website: Living With Long COVID: Education & Awareness Hub (opens in a new tab) -
United Kingdom
Oxford Health Experiences: Long Covid in Adults
University of Oxford research interviews with UK adults about long COVID symptoms, care and recovery.
Visit website: Oxford Health Experiences: Long Covid in Adults (opens in a new tab) -
United Kingdom
Oxford Health Experiences: Family Experiences of Long Covid
Interviews with families affected by long COVID, including parents of children with long COVID.
Visit website: Oxford Health Experiences: Family Experiences of Long Covid (opens in a new tab) -
United States$ Paid
Book: The Long COVID Survival Guide (Fiona Lowenstein, ed.)
Stories and advice from 20 long haulers and experts, with an afterword by Dr. Akiko Iwasaki (The Experiment, 2022).
About the book: Book: The Long COVID Survival Guide (Fiona Lowenstein, ed.) (opens in a new tab) -
United States$ Paid
Book: Clearing the Fog (James C. Jackson, PsyD)
Practical guide to long COVID brain fog and cognitive recovery by a Vanderbilt neuropsychologist (2023).
About the book: Book: Clearing the Fog (James C. Jackson, PsyD) (opens in a new tab) -
United States$ Paid
Book: The Long Haul (Ryan Prior)
Journalist Ryan Prior on how long haulers and ME/CFS patients are changing medicine.
About the book: Book: The Long Haul (Ryan Prior) (opens in a new tab) -
United Kingdom$ Paid
Book: The Long Covid Self-Help Guide
Self management strategies for each symptom cluster, from specialists at the Oxford Post-Covid Clinic (Bloomsbury, 2022).
About the book: Book: The Long Covid Self-Help Guide (opens in a new tab) -
United Kingdom
Podcast: The Recovery Room with Jackie Baxter (formerly Long Covid Podcast)
Free podcast by Jackie Baxter, who lives with long COVID, interviewing patients and clinicians. More than 225 episodes.
Listen: Podcast: The Recovery Room with Jackie Baxter (formerly Long Covid Podcast) (opens in a new tab) -
International
Podcast: Voices of Long Covid
Personal accounts from people living with long COVID, in their own words.
Listen: Podcast: Voices of Long Covid (opens in a new tab) -
Across Canada
The Big Story Podcast: What’s It Like to Live With, or Treat, Long COVID?
Canadian news podcast episode (June 2022) on daily life with long COVID and the strain on care.
Listen: The Big Story Podcast: What’s It Like to Live With, or Treat, Long COVID? (opens in a new tab) -
Across Canada
CBC: Gill Deacon on Life with Long COVID
CBC Radio host Gill Deacon’s personal essay, “What I want are recovery narratives” (December 2023).
Read the article: CBC: Gill Deacon on Life with Long COVID (opens in a new tab) -
Across Canada
The Globe and Mail: Canada Needs a Long-COVID Strategy
Opinion piece by Dr. Fahad Razak and Dr. Angela Cheung making the case for a national long COVID strategy in Canada. May require a subscription.
Read the article: The Globe and Mail: Canada Needs a Long-COVID Strategy (opens in a new tab) -
Across Canada
Mental Health Commission of Canada: Pace, Plan and Prioritize
One woman’s story of coping with long COVID using pacing, planning and prioritizing (2023).
Read the article: Mental Health Commission of Canada: Pace, Plan and Prioritize (opens in a new tab) -
United States
The New York Times: 1,374 Days, My Life With Long Covid
Information designer Giorgia Lupi’s visual essay tracking years of her long COVID symptoms (December 2023). May be paywalled.
Read the article: The New York Times: 1,374 Days, My Life With Long Covid (opens in a new tab) -
United States
The New York Times: Long Covid Is Keeping Significant Numbers of People Out of Work
News story (January 2023) on a workers’ compensation study showing how long COVID keeps people out of work. May be paywalled.
Read the article: The New York Times: Long Covid Is Keeping Significant Numbers of People Out of Work (opens in a new tab) -
United States
NPR Fresh Air: A Practical Guide for People with Long COVID
Interview with neuropsychologist James C. Jackson about brain fog and his book “Clearing the Fog” (May 2023). Audio and transcript.
Listen: NPR Fresh Air: A Practical Guide for People with Long COVID (opens in a new tab) -
United States
NPR: The Long COVID Survival Guide to Finding Care and Community
Interview with Fiona Lowenstein about the patient written “Long COVID Survival Guide” (November 2022).
Listen: NPR: The Long COVID Survival Guide to Finding Care and Community (opens in a new tab) -
United States
STAT: The Haunting Brain Science of Long Covid
Critical care physician Dr. Wesley Ely on what brain research reveals about long COVID (February 2023).
Read the article: STAT: The Haunting Brain Science of Long Covid (opens in a new tab)
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Long COVID clinic map
Find long COVID clinics and providers near you across Canada.
View the clinic mapStudies & trials
Research opportunities open to people living in Canada.
View studiesKids & long COVID
Research, articles and resources for kids and their families.
Learn moreLatest news
Updates on long COVID research and policy in Canada.
Read the blogHow resources are chosen and checked
Every link on this page was opened and checked on September 27, 2026. Broken links were replaced with the official current page, and programs that have closed were removed.
- Evidence informedI look for guidance that follows current research and takes post exertional malaise and pacing seriously.
- Patient centredI prioritize organizations led by, or built with, people with lived experience.
- Canada firstCanadian clinics and organizations come first, alongside well known international groups.
- IndependentNo organization pays to be listed, and a listing is not an endorsement.
Long COVID in Canada: frequently asked questions
What is long COVID?
Long COVID, which the Government of Canada calls post COVID-19 condition, is when symptoms continue or develop in the months after a COVID-19 infection. Common symptoms include fatigue, brain fog, shortness of breath, a fast heart rate and post exertional malaise (PEM), where activity triggers a delayed crash. According to the Public Health Agency of Canada, as of June 2023, 19% of adults in Canada who got COVID-19 had symptoms 3 or more months after infection.
How do I find a long COVID clinic in Canada?
See the Long COVID Clinics page: a province by province map and directory of long COVID clinics, hospital rehab programs, virtual care and phone lines. Each listing shows whether it’s free and whether you need a referral.
What should I bring to my doctor about long COVID?
Bring a written list of your symptoms and a clinician guide from the essential guides, like the Bateman Horne Center Clinical Care Guide, the #MEAction Pacing and Management Guide or the Long COVID Treatment Guide. Canada’s national guidelines (CAN-PCC) and the Government of Canada’s page for health professionals are also useful to share.
Can I get financial help or disability benefits for long COVID in Canada?
Possibly. If long COVID severely and persistently limits your daily activities, you may qualify for the federal Disability Tax Credit (form T2201). Realize, a Canadian charity, publishes a Roadmap for Disability Income Benefits for people with long COVID, plus tips for disability claims and returning to work. See Work, income & disability benefits.
How is long COVID connected to ME/CFS and POTS?
Many people with long COVID develop symptoms that overlap with, or meet the criteria for, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and postural orthostatic tachycardia syndrome (POTS), a form of dysautonomia. That’s why this directory includes ME/CFS and dysautonomia organizations such as the Bateman Horne Center, #MEAction, Solve ME/CFS Initiative, Dysautonomia International and the ME|FM Society of BC. Try searching “ME/CFS” or “POTS” above.
Where can I find long COVID support for kids and families in Canada?
Long Covid Kids and Long Covid Families share resources and support for children, parents and caregivers, and the RECOVER tip sheet helps parents prepare for a child’s doctor visit. Use the “Kids & families” filter above, or visit the Kids and long COVID page.
How can I take part in long COVID research in Canada?
Long Covid Studies lists current long COVID clinical trials, using data from ClinicalTrials.gov. The PLRC Registry can also match adults with long COVID studies. You can also see the studies and research page for opportunities open to people living in Canada.
How does Long Covid Resources Canada check these resources?
Every link in this directory was checked on September 27, 2026. Broken or moved links were replaced with the official current page, and programs that closed were removed. Listings are not endorsements, and no organization pays to be listed.
Know a resource that should be here?
Tell us about clinics, programs or tools that have helped you, or let me know if a link has changed. I review every suggestion.
Please note: Listing an organization here is not an endorsement, and nothing on this page is medical advice. Programs, phone numbers and eligibility can change, so please confirm details with the provider. Talk with a healthcare provider you trust before starting any new treatment or program.
